Sign in | New here? Sign Up
A community of cancer survivors supporting each other.

Laren's Cancer Blog

Where are we going?

We started the new chemotherapy last Friday but Emsnana started having terrible nausea and vomiting. We went into urgent care and she was provided iv fluids and felt a little better, but two days later the nausea returned and the diarrhea started.  She was miserable. Again we called and they said come in and decided to go ahead and admit her to the hospital(Thursday). Believe it or not, this was her first hospital admission since she was 12, except for childbirth. She has been in for two days and is not feeling much better. In fact, she is miserable. They are giving her the usual suspects for the diarrhea and vomiting, but her symptoms are not improving much. She is getting very discouraged, since we are not getting much insight into a plan of care. Of course the weekend makes it harder. Any insight out there on the expect pathway for getting on track with chemo? The Gemzar/Abraxane was not nearly so difficult. We are starting Onyvide/5FU, in addition to the experimental drug. My wife's energy is seriously flagging.

4 people threw a punch at your cancer.
3 people sent you a prayer.
6 people sent you a hug.
Sign in or sign up to post a comment.
Does she have a virus? Because it sounds more like "normal sick" and not cancer. Please give her a hug from me.😘
That is a lot of chemo. Very sorry to hear of Emmsanas change of condition. Hopefully it will get better and she can continue with her chemo. Maybe she needs to have it reduced a little. Wish her only the best.

Ask Susan about the Onyvide as I believe she said her man was taking it now.
Just completed the second treatment of the folfox regimen and have done well with it, myself. Second one much better tolerated than first one.
5FU was rough for me with diarrhea, but I did it with radiation. I know combining chemo drugs can increase side effects. Everyone reacts differently. Hugs for strength for both of you.
I too am very sorry to hear of your wife's new troubles. Unfortunately I think these are the symptoms of 5-fu that we were told was the most toxic of the pc cancer treatments. It may not be the right one for her if she can't tolerate it. Please tell your wife Deborah is thinking of her and keeping her in my prayers. I'm glad Nancy has chimed in as she is having that same chemo right now. God Bless both of you, stay strong.
My man was on Onyvide/5-FU and had to have constant dosage adjustments on account of the same side effects - particularly diarrhea. You say that Nana is on this regimen IN ADDITION to the experimental drug? Wow. She is a tough cookie. I've no doubt that her oncologist will make the adjustments required for her well-being and stamina - and that the right balance will be found between fighting the disease and maintaining her quality of life. It is still early days, Laren - and I'm sure she will improve. Tell Nana I am sending positive thoughts and prayers her way (and yours). XOXO 💪🏽💜
Please tell her i love her and am praying for her. hugs Sabina
Sign in or sign up to post a comment.

Still fighting

i haven't posted here lately but those of you who know Emsnana is my bride and read her post know that the Gemzar has quit working. We took a few weeks off to enjoy the grandchildren and travel a bit, knowing the day of reckoning was coming. Her CA19-9 kept climbing and finally hit 10,000 as we were considering other options. She also has new tumors in the liver and abdomen. We finally decided to participate in a clinical trial at Emory University and were accepted. This is a drug which has shown promise in a number of solid tumors. It is given orally, along with traditional iv drugs. We started last week with the oral drug, which comes with the usual GI distress. We are optimistic and less overwhelmed than when we got the first diagnosis, but, again, we have no illusions. We still have our heroes like Susan and Rick to keep us hopeful. We have cleared the decks over the next several weeks to concentrate fully on managing treatment. The good thing about a clinical trial,is that you are followed very closely by an expert. Our nurse calls almost every day, so we feel that someone is really paying attention. Emsnana's quality of life is still high, nausea notwithstanding, so I am sanguine about having a good life over the next several months. I will keep you posted.

Betsy likes this post.
Thomas threw a punch at your cancer.
Thomas sent you a prayer.
3 people sent you a hug.
Sign in or sign up to post a comment.
yes..please keep us updated....did they ever do the Gemzar with the Abraxane? That is what Emilee started with, then went to Gemzar and eventually to folfiri and then folfox... what is the clinical trial drug if you can say?? My thoughts and prayers are with you as you continue on...
Thomas likes this comment
We started wth both but they had to discontinue the Abraxane because of pneumonitis. The clinical trial drug is BBI608
they stopped abraxane because of neuropathy...stopped gem because of pneumonitis....
cancer stem cell inhibitor...hope and pray it works...previously used for gastric cancer and another but I dont rmember even tho I just looked it up...but you probably already know all this
Thank you for the update. So sorry to hear about the new spots. My husband is taking post surgery chemo right now and they had to reduce it to just Gemzar because his white cell count couldn't withstand it with Abraxane. Otherwise he was doing well and very active, even getting some running in. We are planning our spring vacation, a month in AZ is on the books. He should be done with treatment but if he has to have it, he can get it out there.

We wish you the best on all fronts. Please give Emsnana our love.
Thomas, Susan J like this comment
You guys - like Laren and Nana - are amazing! I love that you just keep on truckin' and living your lives.....cancer be damned! 💜💪🏽
Deborah likes this comment
We have paws and fingers crossed for success with the trial drugs. Our thoughts and prayers and with you. Hugs :*)
Keep fighting. I am on clinical trial 4. We keep fighting until they find a cure!
Susan J, Marcia like this comment
Holding Emsnana, your family and all warriors, in constant prayer for comfort and strength. XO
If anyone can pull this off, it is you - Laren and Nana. I'm curious: have you ever been given the onivyde option? My husband started on gem plus xeloda, then went to gem plus abraxane - and then to 5-FU plus onivyde. This regimen worked for about a year and a half - and was still working (!) when he moved to the drug Lynparza that is designed for BRCA-positive cancers. Good luck and keep us posted!! 💜💪🏽
(PS: Rick and Kathy are my heroes too.)
I'm glad Nan is on a clinical trial and being followed so closely. There were a number of trials that have opened up recently from what I've heard. In the meantime, as you stated, you continue to live each day and enjoy to the best of your ability.
Sign in or sign up to post a comment.
rollerFetching more entries....
avatar

Vital Info

Posts

July 19, 2015

Loved One is a Cancer Survivor/Fighter

Cancer Info

Pancreas Cancer

Stats

Posts:
25
Photos:
0
Events:
0
Supporters:
42
Friends:
22
Comments:
-Made:
0
-Received:
210
Views:
-Posts:
11762
-Photos:

New Here?

Sign up to comment or create your own blog. Already a member? Sign in